The Foundation for Peripheral Neuropathy (FPN) is a 501(c)(3) public charity. Our mission is to dramatically improve the lives of the millions of people living with peripheral neuropathy (PN). PN is a neurological condition with diverse (and, often, unknown) causes – including diabetes, chemotherapy and autoimmune – and numerous symptoms, including pain, numbness and balance problems.
Reporting to the Board of Directors, the Executive Director (ED) will have overall strategic and operational responsibility for the Foundation for Peripheral Neuropathy’s staff, programs, expansion, and execution of its mission.
Leadership & Management:
Ensure ongoing programmatic excellence, rigorous program evaluation; recommend timelines and resources needed to achieve the strategic goals.
Supervise FPN staff. Provide leadership and direction, setting work priorities. Provide ongoing professional development evaluation and feedback.
Actively engage and energize FPN volunteers, board members, donors, partnering organizations, and major funders.
Recruit, develop, maintain, and support a strong Board of Directors; seek and build board involvement with strategic direction for both ongoing operations as well as national initiatives.
Ensure effective systems to track progress, and regularly evaluate program components, so as to measure successes that can be effectively communicated to the board, funders, and other constituents.
Responsible for developing annual budget and ongoing financial review and management
Maintain official records and documents, and ensure compliance with federal, state and local regulations
Fundraising & Communications:
Manage the work of the Director of Development and Marketing planning fundraising campaigns and marketing initiatives including website initiatives, SEO and social media.
Steward and cultivate major donors. Serve as point of contact for all major grant-making partners. Responsible for grant reporting to funders.
Responsible for the ongoing development of the Foundation’s website, creation of newsletters and brochures, organizing Board meetings, and other aspects of promoting the Foundation to promote awareness of peripheral neuropathy.
Manage Research programs and initiatives:
Serve as professional liaison between the Board of Directors and the Scientific Advisory Board.
Manage the grant making process for the Peripheral Neuropathy Research Registry (PNRR) and other possible research projects. Review grant proposals, negotiate grant terms and oversee use of grant funds by grant recipients.
Supervise PNRR Project Manager.
Manage contractual relationship with Indiana University for hosting PNRR.
Manage contractual agreements between grantees and FPN.
Plan and manage bi-annual research symposium or alternative PN conference participation
Manage relationships and possible funding opportunities with possible corporate (e.g. pharma) and government (e.g. NINDS, NIH) partners.
Minimum 5-7 years’ experience in non-profit management.
Experience in development and in the medical field or medical organizations desirable but not required.
With more than 20 million Americans living with peripheral neuropathy, The Foundation for Peripheral Neuropathy (FPN) is committed to advance the pace of innovative scientific discovery, accelerate a cure and raise awareness for peripheral neuropathy. Celebrating its 10th anniversary, FPN is the only organization in the U.S. that aggressively funds and fosters collaboration among today’s most gif...ted neuroscientists and physicians who are dedicated to neuropathy research and treatments to develop new and effective therapies that can reverse, reduce and—one day—find a cure for peripheral neuropathy. Additional programming includes symposiums for researchers and healthcare providers, educational seminars for patients, newsletters for patients and healthcare providers, and a national Peripheral Neuropathy Research Data Repository. Further information can be found at www.foundationforpn.org.